Cystinosis Charity Update.

Just to let you all know that Cystinosis UK/biz has changed names and has been granted full Charity Status.

It is now known as CFSN which stands for Cystinosis Family Support Network.

We have a Charity Fund Raising Evening planned for Saturday 5th November at Gilroyd Club, Saville Road, Barnsley.

There will be a Compere, several Solo Singers, a Comedian and a 60's Tribute Band performing. Tickets are priced at £2.50 each. If you are interested in attending please contact the Club on (01226) 206800.

Thank you for your help in the past.

For further information on Cystinosis check out:

http://www.portal.cystinosis.biz/